It was a good experience at my last visit to MHNI. We talked about how PT was good but left me in lots of pain. We also discussed increasing some of my meds, which has helped tremendously. But something we discovered was an abnormality on my neck MRI. To think I had seen my other neurologist going on three years and he never ordered a neck one.
A syrinx was found from C7 to C4. A syrinx is a fluid filled tube like a cyst in or on your spinal cord. It causes neurological damage and will continue to do so until it is removed or drained. I see their most highly recommended neurosurgeon this coming Tuesday. My symptoms are mild, but there. A lot makes sense now, especially things I just attributed to my migraines. I hadn't separated out symptoms that were happening not during a migraine attack. Also, the fact that I can get painful headaches at the base of my skull that don't have other migraine symptoms. On the other hand, frequently, these headaches can trigger a migraine.
Some of my symptoms include, persistent neck and upper back pain. This includes several knots that never seem to go away. And I've had them worked on quite a bit. I do have a tiny bit of weakness in my arms, too. I also have times when my speech seems slurred, which I thought was just a migraine warning. Trouble finding and pronouncing words, too. I have buzzing and ringing in my ears and sometimes skin crawling. I also get leg cramps. I do get muscle cramps at the base of my skull on either side, too. This has been a new kind of headache I've developed in the past year. It can trigger a migraine sometimes, too.
Either way, its there and we're going to find out soon what can be done about it. Everything I read says that the progression is very very slow. This could also lead to a diagnosis for Chiari malformation. Where the brain doesn't fit in the base of the skull correctly. If that is the case then there is surgery for that also.
This has been a lot to think about. I know I'm not at deaths door and that there are options but it is so different thinking there might be something going on than having it confirmed there is something else unpleasant going on. Lets hope for the best and like many people have said to me, at least I'm getting answers.